'New screening could have saved our baby's life'

The Generation Study, which is now available at Nottingham University Hospitals (NUH) NHS Trust, tests for more than 200 rare ...
SMA News Today

Early C-section helped baby with SMA begin her treatment right away

A case report shows a baby with SMA met typical motor milestones at 10 months after a planned early C-section helped ...

Breathing disruptions during sleep widespread in newborns with spina bifida, study finds

Children with spina bifida, a malformation of the spinal cord that can lead to mobility impairments and hydrocephalus—a buildup of fluid in the brain—face significant risk of cognitive difficulties ...
SMA News Today

SMA effects on development of nervous system worse than thought: Study

Spinal muscular atrophy affects the development of the nervous system more profoundly than was previously thought, a new ...
The Independent on MSN

What is SMA? The rare genetic condition that Jesy Nelson’s twins have

What is SMA? The rare genetic condition that Jesy Nelson’s twins have - Former Little Mix star revealed her twin daughters had been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 ...
The Independent on MSN

What is spinal muscular atrophy?

What is SMA? The rare genetic condition that Jesy Nelson’s twins have - Former Little Mix star revealed her twin daughters had been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 ...

Children ‘robbed’ of quality of life: Test delays affect babies with spinal muscular atrophy

More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...